 |  | |
 |  |  | |  | |  |
Research outline & results
Publications
Posters of the three phases of HERO were published at the XXIII Congress of ISTH 23-28 July 2011 in Kyoto, Japan.
Download the posters in Literature Review (PDF), Qualitative Inquiry (PDF) and summary outline of the planned Quantitative Inquiry (PDF)
Literature Review
The literature review suggests that with improved treatment, psychosocial issues diminish for haemophilia patients and their families. However, the review highlights the need for more research within this area.
Download the Literature Review.
Qualitative Research
The aim of the qualitative survey was to identify key psychosocial issues affecting people living with haemophilia. The survey involved face-to-face interviews with 150 patients, parents and health care professionals in 7 countries.
The survey identified key psychosocial issues and suggested that appropriate support could be beneficial.
Download the briefing paper on the Qualitative Results (PDF).
Quantitative Inquiry
As the final step of the research an online survey will be conducted in the haemophilia community among 1200 patients and parents from 11 countries in 2011.
The aim is to inform future advocacy and the development of new solutions to improve lives across the haemophilia community. The first results are expected during 2012.
Download a summary outline of the planned Quantitative Inquiry
